Baby boy with rare heart disease celebrates birthday in hospital

Posted at 6:44 PM, Jun 30, 2017
and last updated 2017-06-30 22:26:51-04

One baby boy is celebrating his first birthday and it's especially sweet. 

Rylan was born with a complex form of congenital heart disease. It's called double outlet right ventricle (DORV) and it's rare. He's already had two open heart surgeries, and has spent much of his life in the hospital. 

On Friday, nurses and doctors helped him celebrate once Rylan and his family came up from Tucson for anther procedure. 

For his family, having this support is huge. 

"It's a very vulnerable time," Ashley Kock, his mother, said. "It's nice to have people who are there for you and understand what you're going through." 

"We celebrate his birthday, his first birthday," Dr. Nguyen Vu Nguyen with the Banner Cardon Children's Hospital said. "It's a phenomenal marker in the life of this family." 

A lot of staff has grown attached to baby Rylan, and his family is appreciative of their work and care.