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Health costs force families to make tough choices


Last Update: 1/13 11:38 am
Horizon Health Center employee Nickie Bennerman looks on as Lee Fenner Sr. signs for his diabetes and arthritis medication. Fenner, 51, has worked for 34 years, but is now retired due to health reasons and finding it hard to pay for his health-care needs. ((SHNS photo by Shawn Rocco / Raleigh News & Observer))
Horizon Health Center employee Nickie Bennerman looks on as Lee Fenner Sr. signs for his diabetes and arthritis medication. Fenner, 51, has worked for 34 years, but is now retired due to health reasons and finding it hard to pay for his health-care needs. ((SHNS photo by Shawn Rocco / Raleigh News & Observer))
By SABINE VOLLMER
Raleigh News & Observer

Getting laid off could cost Tim Willey his life.

Willey, 45, has colon, liver and lung cancer. Health insurance paid for by his former employer, a Raleigh, N.C., electric contractor, covered his chemotherapy until he lost his job Oct. 23. Since then, he has been paying $231 per month to temporarily continue his health insurance benefits under provisions of the Consolidated Omnibus Budget Reconciliation Act, or COBRA.

But he isn't sure how much longer he can afford the COBRA payments, his co-pay for the prescription drugs and the mortgage payments for his house.

Willey is among an increasing number of people who find themselves in a difficult situation: They have to decide whether to spend their limited resources on food, housing and transportation or on medical care. Many consumers have begun to skip checkups, postpone surgeries and leave prescriptions for expensive medicines unfilled.

At the same time, enrollment in Medicaid, the health insurance program for the poor, has begun to rise again after years of declines.

Waiting to sort out unemployment and disability applications at a North Carolina Employment Security Commission office recently, Willey couldn't figure out how to adjust his medication to save money.

"If I try to do anything, it's all downhill," he said.

As consumers look to lower expenses, cost can trump disease prevention, and lives are put on the line, especially among the uninsured, the underinsured and the increasing number of unemployed about to lose health insurance.

Brian and Kimberly Endicott and their five children have long been one medical emergency away from financial catastrophe.

The Youngsville, N.C., couple's oldest child has severe brain damage from an accident. Their three youngest children have cystic fibrosis, an incurable genetic disease that affects the lungs and digestive tract and requires constant medical care. In 2002 and 2005, their 12-year-old daughter, Claire, spent months in the hospital with life-threatening bacterial infections brought on by the disease.

The Endicotts, who own a small appliance-repair business, have never been able to afford the $8,000 a month it would cost to insure the whole family. But with the help of Medicaid and supplemental state programs, they were able to pay for most of their children's medical needs. That changed about nine months ago when customer calls for appliance repairs dropped off by more than half.
Patrick Endicott, 6, left, gets his inhalation treatment while talking with sister Claire, 12, at home. Alex, 8, right, gets vest percussion therapy as their parents, Brian and Kimberly, watch. Patrick, Alex and Claire all have cystic fibrosis, and Kimberly has autonomic nerve damage.  ((SHNS photo by Ethan Hyman / Raleigh News & Observer))
Patrick Endicott, 6, left, gets his inhalation treatment while talking with sister Claire, 12, at home. Alex, 8, right, gets vest percussion therapy as their parents, Brian and Kimberly, watch. Patrick, Alex and Claire all have cystic fibrosis, and Kimberly has autonomic nerve damage. ((SHNS photo by Ethan Hyman / Raleigh News & Observer))
"If we have to live with this economy another six months, we'll be out of business," Kimberly Endicott said.

The Endicotts have drastically cut their weekly grocery bill, focusing on their children, particularly on the special dietary needs of those with cystic fibrosis. That leaves the parents with about one meal a day. Brian Endicott has lost a lot of weight, partly because of persistent stomach problems. Fearful of a diagnosis that would require costly treatment, he refuses to see a doctor, his wife said.

Kimberly Endicott is stretching the prescription medicines that she's supposed to take since an untreated injury forced her into a wheelchair, wreaked havoc with her blood pressure and left her in constant pain. The improper drug doses she is taking are causing side effects, and her blood pressure has at times plummeted to dangerously low levels.

"I'm running a risk. I know that," she said. "But I don't know what else to do."

The economic turmoil is only one part of a double whammy that Americans in need of health care are dealing with, said Dr. Kevin Schulman, a health-policy expert at Duke University.

For years, runaway health-care costs have driven up out-of-pocket expenses that insured workers must pay for medical procedures, doctor visits and prescription drugs. The percentage of workers who pay annual deductibles of at least $1,000 has gone from 12 percent to 18 percent in just the past year, according to the Kaiser Family Foundation.

Illness or medical debt already contributes to more than half of all personal bankruptcies, and in most of the bankruptcies, people have health insurance.

Lee Fenner Sr. receives free medical care at the Horizon Health Center, which caters to homeless men.

Fenner had health insurance until he lost his job as a residential heating manager for a social-services agency nine years ago. He has lived at the Raleigh Rescue Mission since April, after mounting medical bills cost him his home of 15 years.

Without the annual checkups that he got while he had insurance, Fenner said, congestion that built up around his heart went undetected until he had a heart attack in June 2006. So did the developing diabetes that was diagnosed after he went temporarily blind five months ago.

Now, Fenner worries about how he'll afford the multiple prescription drugs he takes once he gets back on his feet.

(E-mail Sabine Vollmer at sabine.vollmer(at)newsobserver.com.)

(Distributed by Scripps Howard News Service, www.scrippsnews.com.)


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